I am finally finding my way back here after a long hiatus! I joined after getting my Millie in January 2014. But in June 2014, my 4 month old nephew Isaac was diagnosed with SMA 1-a terminal, genetic disorder. It is the #1 genetic killer of children under the age of two. At the time, my sister and BIL were told to take him home and love him and he probably only had 6-8 months. Well, due to intense care by my sister, BIL, in home nurses, constant prayer and support of people from around the world and now one year of a miracle drug called Spinraza, Isaac will turn four in February!