witha'K'quilting Posted February 5, 2012 Report Share Posted February 5, 2012 It has been 7 weeks since we first took Taylor to the ER. Her blood work is improving overall, however, some numbers are not where the docs want them. She is still on iv antibiotics and anticoagulants. We hope they take her off the antibiotic this week. That is the plan at least (8 weeks). They will do an MRI/MRV with contrast (Monday night) and take a closer look at the veins and whether the clotting is growing or changing. They are also looking to see if there is any flow in the veins or if new veins are growing . These images will determine what happens next from what I understand. Hemetology wants to run more tests for blood disorders some time in the future when she comes off the antibiotic. They aren't so convinced that there isn't something more going on. I sure hope there isn't . Taylor has been such a trooper. She is so positive and doesn't complain about much. One stitch holding the PICC line in place bothers her a bit...and she winces when we change the dressing, but that is all she ever mentions. (they must have hit a nerve?) The IV Team is going to evaluate her PICC line Monday and decide if it can stay in longer. They are hoping so since she will be having more blood draws and most likely more MRIs. They said they don't want to pull it if it is in good condition. She is taking classes online through the district's alternative school. So far, she is doing well in her three core classes. She misses being in school...but understands that this is best for now. The school is giving her until the end of summer to use the online classes to keep up and hopefully even get ahead during this time. I have gone from not only Mom, but to teacher and nurse too. Boy am I tired with not only her, but Sven's diabetes has been slightly out of whack as well. He goes to Salt Lake with us this week for his appointment. I can't wait until things settle down. I will update again when we know more after Tuesday. Thanks for the continued prayers. Wednesday morning....here is what we know. We had to stay over one more night...because her picc line is getting pulled out this morning. She is done with iv antibiotics. We found out she is allergic to the mri contrast solution..so a ct scan with contrast was ordered yesterday afternoon so the infectious disease doctor could feel confident that there was no residual infection looming near he brain. radiology felt things looked great. They checked her veins. No additional clotting. In fact, her transverse vein system has slight flow. Sigmoid vein and jugular vein have zero flow still. She will remain on anticoagulants at least another 4 months, being reevaluated in 2 months. At this time, no additional images are expected to be taken. Also, no additional blood tests are to be taken. Hemetology does not believe there are any blood disorders either. She will meet with iv team this morning to pull the picc line. Wound care will address the issues with her skin under the picc dressing. She developed a bad case of contact dermatitis...but no infection from it. The insertion site looks great. I got emotional as I heard the words, "we are done with treatment." I hoped to hear that the clotting was resolving...but instead have to accept that it will remain. It is stable...and is becoming somewhat fibrous in nature. We are thankful however. Taylor is headache free, feels great, looks fabulous, and will continue to heal. Hopefully, by next august, will be ready to jump back in to soccer. She was bummed out by not being released for track season. Anticoagulants won't allow that. She will continue to stay home and take computer classes...maybe adding one class at the school to get her back in the groove. She still gets very tired in the day, but the docs want her to push herself and get back to a normal routine. These past 2 months have changed all our lives. It is time to get back to normalcy for all of us. Thanks for the prayers. We got our taylor back. God is so good. Link to comment Share on other sites More sharing options...
cblevins Posted February 5, 2012 Report Share Posted February 5, 2012 Hang in there Kristina! Taylor has so many people praying for a full recovery. Link to comment Share on other sites More sharing options...
carolinequilts Posted February 5, 2012 Report Share Posted February 5, 2012 You are the best mom Kristina! Sending lots of hugs your way and wishing Taylor a speedy, full recovery. Link to comment Share on other sites More sharing options...
aktbone Posted February 5, 2012 Report Share Posted February 5, 2012 Thumbs up to you - mom! Way to go Taylor! Praying that all continues on the uphill with your family. God Bless each of you. Link to comment Share on other sites More sharing options...
Bekah Posted February 5, 2012 Report Share Posted February 5, 2012 Kristina thank you for the update. Have been wondering how Taylor is and how you are holding up. Sending healing prayers for Taylor and Sven and prayers for you to have strength and peace during this time. Link to comment Share on other sites More sharing options...
Quilting Heidi Posted February 5, 2012 Report Share Posted February 5, 2012 Kristina, Keeping you all in my prayers. Thanks for the updates on both Taylor and Sven. Hang in there and make sure you make a little time for yourself. I know that is so hard to do but so necessary. Link to comment Share on other sites More sharing options...
Primitive1 Posted February 5, 2012 Report Share Posted February 5, 2012 Thanks for the update, we will continue to pray for your family as you go through these tough times..... Link to comment Share on other sites More sharing options...
LauraJ Posted February 5, 2012 Report Share Posted February 5, 2012 Thanks for letting us know. Hope Taylor knows how many quilting warriors are out here praying for her! Link to comment Share on other sites More sharing options...
Linda G. Craig Posted February 5, 2012 Report Share Posted February 5, 2012 Prayers for Taylor and Sven, and your entire family. Take care of yourself too, Kristina, there is a huge demand on your strength right now, taking the time to recharge is so important. Prayers always............ Link to comment Share on other sites More sharing options...
KarenH Posted February 5, 2012 Report Share Posted February 5, 2012 Keeping Taylor in my prayers, and also that you get good news next week from her doctors. Kristina take care of yourself, your familly needs you. Link to comment Share on other sites More sharing options...
LibbyG Posted February 5, 2012 Report Share Posted February 5, 2012 We'll continue to keep Taylor in our prayers. Thanks for the update. Link to comment Share on other sites More sharing options...
chrisquilter Posted February 5, 2012 Report Share Posted February 5, 2012 What a great family you guys are! Just the fact that Taylor is handling all this with such grace gives testament to your strong and supportive family. Blessings and strength to all of you to work through this difficult time. Link to comment Share on other sites More sharing options...
quiltinchicks Posted February 5, 2012 Report Share Posted February 5, 2012 Kristina, you and Taylor are in my thoughts and prayers everyday. It seemed like an eternity when my daughter was home with a picc line. You hang in there! Link to comment Share on other sites More sharing options...
RoseCity Quilter Posted February 5, 2012 Report Share Posted February 5, 2012 Thanks for the update, have been thinking about her and praying for her. Hang in there Kristina, remember to take care of yourself too. Sounds like you are a fabulous mother.... Link to comment Share on other sites More sharing options...
Myrna Ficken Posted February 5, 2012 Report Share Posted February 5, 2012 Prayers for you and your family Kristina. Link to comment Share on other sites More sharing options...
meg Posted February 5, 2012 Report Share Posted February 5, 2012 hang int here kristina (hugs) Link to comment Share on other sites More sharing options...
GrandmaLKB Posted February 5, 2012 Report Share Posted February 5, 2012 Sending good vibes to you all......())()()()()()()()()( Link to comment Share on other sites More sharing options...
aleksich Posted February 5, 2012 Report Share Posted February 5, 2012 thank you for the update on Taylor, I hope all goes well for her in the testing. I know how scary this has been for your whole family. Prayers to keep up the strength to deal with all of it. Link to comment Share on other sites More sharing options...
quiltmonkey Posted February 5, 2012 Report Share Posted February 5, 2012 I've been wondering about your family and glad to learn the latest news.... Link to comment Share on other sites More sharing options...
lizziesgirl Posted February 5, 2012 Report Share Posted February 5, 2012 I think of Taylor, Sven and all of you often and pray. Link to comment Share on other sites More sharing options...
KathG Posted February 5, 2012 Report Share Posted February 5, 2012 ((((((((Kristinia))))))), I will keep Taylor , Sven and all your family in my thoughts and prayers. Link to comment Share on other sites More sharing options...
WestieMom Posted February 5, 2012 Report Share Posted February 5, 2012 Taylor, Sven, you and your family are in my prayers. Thanks for the update. I've been wondering how Taylor is doing. Link to comment Share on other sites More sharing options...
LadyLake Posted February 5, 2012 Report Share Posted February 5, 2012 Thanks for letting us know how it is going with Taylor. She is lucky to have a mom like you, Kristina. Link to comment Share on other sites More sharing options...
Anniquilter Posted February 5, 2012 Report Share Posted February 5, 2012 Thanks for the update Kristina. Continuing with prayers for Taylor, Sven and all of you. Link to comment Share on other sites More sharing options...
JustSewSimple Posted February 5, 2012 Report Share Posted February 5, 2012 Taylor sounds like a precious precious patient! You sound like a wonderful nurse, teacher and mom! I think about you guys all the time. Link to comment Share on other sites More sharing options...
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