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It's funny how life can change in a moment and all things that you love doing don't seem important anymore. It's been a few months since I've been here participating and loving all the eye candy quilts you ladies create. This morning, I woke up and realized how much I miss sewing and quilting and seeing what everyone here is up to and thought I could at least log on every now and then and enjoy you all even if I'm not doing much myself.

 

Last December I found I had a thyroid problem and expected getting on medicine would help fix me, but it didn't. Then in September I was diagnosed with chronic Lyme and Babesia of all things! At this point I'm still undergoing testing. The upsetting thing is that no one caught my illnesses early on (despite having tons of symptoms) and it's taken a bit of a toll on my joints and health, but hopefully with treatment things will improve. I teased my husband the other night that I may have to sell my quilting machine to pay for treatment if our insurance won't. The health care system frowns on long term antibiotic treatment and it can cost literally $1500 or more a month just for antibiotics and anti-malarial drugs.

I wonder if anyone here has Lyme or a co-infection?

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I don't have any of Lyme but I am intolerant to gluten.  I don't have celiac disease though.  one side affect from this intolerance is sever joint pain and fatigue.  Talk with your doctors about a gluten free diet.  It may help.  That's much better than antibiotics.  Good luck,  keep us posted.  I am so sorry you can't sew and quilt right now.  Better times will come.  

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Bonnie I'm so sorry to hear about your health issues.  I sure hope you find some answers.  There was a guy I worked with that had Lyme and he had some kind of intravenous cocktail of antibiotics.  It was a longterm treatment but it worked for him.  Make sure you see a specialist because Lyme disease can definitely cause some health issues to seem like something they are not.  If you want me to try to get the information on the dr's he saw I can but it would be east coast.

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Bonnie, sorry to hear about your illness.  I pray that you are on the "feeling better" path now.  Great to see your post, I to was off the forum for a long, long time fighting my depression and anxiety demons.  Everyone was very supportive and understanding here.  This group can surely uplift your spirits so keep coming back to say hi.

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Bonnie, sorry to hear about your illness.  I pray that you are on the "feeling better" path now.  Great to see your post, I to was off the forum for a long, long time fighting my depression and anxiety demons.  Everyone was very supportive and understanding here.  This group can surely uplift your spirits so keep coming back to say hi.

Those demons are terrible. They visit me also. Just keep fighting and focus on good aND happy times.

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  • 1 month later...

Thank you all for the well-wishes. The last month has been a flurry of doctor visits and just trying to cope day to day with the exhaustion, shortness of breath and dizziness. I did get into see a Lyme specialist in San Diego. It was a 5 hour trip one way but worth it. Apparently, I also have Bartonella (cat scratch fever). He's suggesting a TWO YEAR regimen (ugh) of treatment and my first month of medicine, generic!, would have been $5000 out of pocket had I not had insurance. I pray the insurance keeps covering the meds but it is probably doubtful as the medical community isn't open to treating chronic infections -- well, except AIDS maybe.

From what I understand my treatment is rotating round of different meds, antimalarials first to treat the Babesia, and antibiotics for the Lyme and Bartonella. I've had to go sugar-free, dairy-free, and grain-free, but for the grain-free, I'm going to do gluten-free first. I've lost 20 pounds without trying. No complaints about that part because I'm fairly overweight! But I do miss my favorite foods!!

Ardelle, I've been following your blog via email. That's about the only thing I follow quilting-wise anymore! How exciting to be moving your shop. Your blog posts always put a smile on my face every time I see a notice of a new post, so thank you for those!

Connie, so many illnesses can cause depression and anxiety. I hope one of your doctors has done some testing for you. I never knew this until I started researching Lyme and thyroid problems. I hope you are doing better and beating it!

 

Deb, that's good news that your SIL is doing well now from her Lyme. From what I hear, a few don't recover or have to start treatment later because of relapses.

I have a client who is possibly terminally ill with cancer and I have two of her quilts in progress. I keep hoping to find the energy and a day when I'm not dizzy to finish her quilts. Corey, let me know if you want me to send anyone your way! I've been turning people away!

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Hi Bonnie, so glad to see you back.  I've been absent a bit lately.  Health issues that go along wi9th the COPD.

 prayers for continued health recovery.  The depression and anxiety are pits of hell that we sometimes can't avoid,

and are hard to recover from.

 

Hugs, Lady, you need a few.,

thanks for sharing

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  • 1 year later...

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