Bonnie H Posted October 29, 2015 Report Share Posted October 29, 2015 It's funny how life can change in a moment and all things that you love doing don't seem important anymore. It's been a few months since I've been here participating and loving all the eye candy quilts you ladies create. This morning, I woke up and realized how much I miss sewing and quilting and seeing what everyone here is up to and thought I could at least log on every now and then and enjoy you all even if I'm not doing much myself. Last December I found I had a thyroid problem and expected getting on medicine would help fix me, but it didn't. Then in September I was diagnosed with chronic Lyme and Babesia of all things! At this point I'm still undergoing testing. The upsetting thing is that no one caught my illnesses early on (despite having tons of symptoms) and it's taken a bit of a toll on my joints and health, but hopefully with treatment things will improve. I teased my husband the other night that I may have to sell my quilting machine to pay for treatment if our insurance won't. The health care system frowns on long term antibiotic treatment and it can cost literally $1500 or more a month just for antibiotics and anti-malarial drugs.I wonder if anyone here has Lyme or a co-infection? Link to comment Share on other sites More sharing options...
judyday Posted October 29, 2015 Report Share Posted October 29, 2015 I don't have any of Lyme but I am intolerant to gluten. I don't have celiac disease though. one side affect from this intolerance is sever joint pain and fatigue. Talk with your doctors about a gluten free diet. It may help. That's much better than antibiotics. Good luck, keep us posted. I am so sorry you can't sew and quilt right now. Better times will come. Link to comment Share on other sites More sharing options...
srichardson Posted October 29, 2015 Report Share Posted October 29, 2015 Sorry to hear that you are still having health issues Bonnie. I do hope that the doctors will find the right treatment for you and you will be back to the doing the things you enjoy. Take care, Link to comment Share on other sites More sharing options...
Quilting Heidi Posted October 30, 2015 Report Share Posted October 30, 2015 Bonnie I'm so sorry to hear about your health issues. I sure hope you find some answers. There was a guy I worked with that had Lyme and he had some kind of intravenous cocktail of antibiotics. It was a longterm treatment but it worked for him. Make sure you see a specialist because Lyme disease can definitely cause some health issues to seem like something they are not. If you want me to try to get the information on the dr's he saw I can but it would be east coast. Link to comment Share on other sites More sharing options...
Gator Posted October 30, 2015 Report Share Posted October 30, 2015 Bonnie, sorry to hear about your illness. I pray that you are on the "feeling better" path now. Great to see your post, I to was off the forum for a long, long time fighting my depression and anxiety demons. Everyone was very supportive and understanding here. This group can surely uplift your spirits so keep coming back to say hi. Link to comment Share on other sites More sharing options...
judyday Posted October 30, 2015 Report Share Posted October 30, 2015 I do hope you are better today Bonnie Link to comment Share on other sites More sharing options...
judyday Posted October 30, 2015 Report Share Posted October 30, 2015 Bonnie, sorry to hear about your illness. I pray that you are on the "feeling better" path now. Great to see your post, I to was off the forum for a long, long time fighting my depression and anxiety demons. Everyone was very supportive and understanding here. This group can surely uplift your spirits so keep coming back to say hi. Those demons are terrible. They visit me also. Just keep fighting and focus on good aND happy times. Link to comment Share on other sites More sharing options...
Quilta93 Posted October 30, 2015 Report Share Posted October 30, 2015 Bonnie, sorry to hear about your illness. A number of years ago my sister-in-law had Lyme disease. I don't think they caught it right away, but when they did and treated her it took her a fair amount of time to recover. She's doing well now. My prayers are with you. Deb. Link to comment Share on other sites More sharing options...
RoseCity Quilter Posted October 31, 2015 Report Share Posted October 31, 2015 Thank you for checking in. So sorry about your health issues. Link to comment Share on other sites More sharing options...
meg Posted November 2, 2015 Report Share Posted November 2, 2015 I'll be praying for you, Bonnie. Link to comment Share on other sites More sharing options...
Corey Posted November 3, 2015 Report Share Posted November 3, 2015 I was wondering what you were up to. Thanks for the updates, I am praying for you. Take care Bonnie. Link to comment Share on other sites More sharing options...
Bonnie H Posted December 9, 2015 Author Report Share Posted December 9, 2015 Thank you all for the well-wishes. The last month has been a flurry of doctor visits and just trying to cope day to day with the exhaustion, shortness of breath and dizziness. I did get into see a Lyme specialist in San Diego. It was a 5 hour trip one way but worth it. Apparently, I also have Bartonella (cat scratch fever). He's suggesting a TWO YEAR regimen (ugh) of treatment and my first month of medicine, generic!, would have been $5000 out of pocket had I not had insurance. I pray the insurance keeps covering the meds but it is probably doubtful as the medical community isn't open to treating chronic infections -- well, except AIDS maybe.From what I understand my treatment is rotating round of different meds, antimalarials first to treat the Babesia, and antibiotics for the Lyme and Bartonella. I've had to go sugar-free, dairy-free, and grain-free, but for the grain-free, I'm going to do gluten-free first. I've lost 20 pounds without trying. No complaints about that part because I'm fairly overweight! But I do miss my favorite foods!!Ardelle, I've been following your blog via email. That's about the only thing I follow quilting-wise anymore! How exciting to be moving your shop. Your blog posts always put a smile on my face every time I see a notice of a new post, so thank you for those!Connie, so many illnesses can cause depression and anxiety. I hope one of your doctors has done some testing for you. I never knew this until I started researching Lyme and thyroid problems. I hope you are doing better and beating it! Deb, that's good news that your SIL is doing well now from her Lyme. From what I hear, a few don't recover or have to start treatment later because of relapses.I have a client who is possibly terminally ill with cancer and I have two of her quilts in progress. I keep hoping to find the energy and a day when I'm not dizzy to finish her quilts. Corey, let me know if you want me to send anyone your way! I've been turning people away! Link to comment Share on other sites More sharing options...
Mary Beth Posted December 9, 2015 Report Share Posted December 9, 2015 Hi Bonnie, I am happy to see you here. I am sorry you have been going through so much. I hope your doctor is on the right track you and you will start to feel better soon. Those quilts will be there when you are ready. Link to comment Share on other sites More sharing options...
Corey Posted December 9, 2015 Report Share Posted December 9, 2015 It is good to see your post Bonnie, I am admiring your positive outlook, keep it up. Yes, I will welcome any and all of your referrals, I will take good care of them. Prayers for your recovery, always. May you always have the joy of The Lord. Link to comment Share on other sites More sharing options...
RitaR Posted December 12, 2015 Report Share Posted December 12, 2015 Hi Bonnie, so glad to see you back. I've been absent a bit lately. Health issues that go along wi9th the COPD. prayers for continued health recovery. The depression and anxiety are pits of hell that we sometimes can't avoid, and are hard to recover from. Hugs, Lady, you need a few., thanks for sharing Link to comment Share on other sites More sharing options...
appr216 Posted December 13, 2015 Report Share Posted December 13, 2015 Bonnie, Good to hear from you and hope your health will improve quickly. Link to comment Share on other sites More sharing options...
Bliss Quilter Posted January 27, 2017 Report Share Posted January 27, 2017 Bonnie, Just saw you post, story to hear you are so ill. I see you haven't posted in a while and hope all is well for you. You are in my prayers. Link to comment Share on other sites More sharing options...
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