MarieBrewer Posted October 7, 2008 Report Share Posted October 7, 2008 Here's an update on my grandson, Case. He was admitted to PICU Thursday morn w/a collasped lung. Things were really bad by Thurs nite. Even talk of taking him home to be in familiar setting awaiting death. The Dr. said he felt Case had some reserve, so lets just keep working. He started w/Cpap and now is on bipap along w/a host of other things. What a trooper. He hasn't had any food in his tummy for 5 days but is given nutrition IV and now they have an NJ tube in awaiting his strength for surgery for a Gtube. Friday nite he smiled at us and we went home knowing that he will be w/us for awhile yet. Yesterday he was so happy and chatty. He has about 20 girlfriends (nurses) that all want to take him home. I can't believe how easy going the little guy is. Has his dad's personality. When he sits on his mommy's lap he looks at everyone as if to say, "you can't hurt me now!!" Don't know how long he will be in the hospital. His beautiful brown eyes just melt the heart. I will post some pic this weekend when I have time. He was baptized Friday and it was a beautiful ceremony. About 20 friends from their church and realatives were there. Thank you Lord!! He's 7 months old now and for those who don't know, he has SMA (Spinal Muscle Atrophy), the #1 genetic killer of children under age 2. Link to comment Share on other sites More sharing options...
ramona-quilter Posted October 7, 2008 Report Share Posted October 7, 2008 Oh Marie, I will put Case and your family in my prayers. Hang in there. It sounds like this little brown-eyed charmer has a strong spirit. God bless you for providing support to them and for keeping us posted. We are quite an army of prayer warriors. Link to comment Share on other sites More sharing options...
DB Posted October 7, 2008 Report Share Posted October 7, 2008 Marie, My heart goes out to you, little man Case, and his parents. Hang in there and take it just one day at a time. My thoughts are with you. Dianne Link to comment Share on other sites More sharing options...
PattyJo Posted October 7, 2008 Report Share Posted October 7, 2008 Marie, Little Case is in my prayers daily. thank you for the update. We will continue to keep him and the whole family in our prayers. Link to comment Share on other sites More sharing options...
ffq-lar Posted October 7, 2008 Report Share Posted October 7, 2008 May you find comfort knowing that we are praying and thinking about your family. Be sure to take care of yourself as well, Marie. Link to comment Share on other sites More sharing options...
RitaR Posted October 7, 2008 Report Share Posted October 7, 2008 Marie, Case, and Family, my prayers will be big on this for the next few days.. driving time or riding along time, gives lots of time for prayer.. A friend of ours said once.. (she didn't mean kids aren't great, she was talking of young adults.. ) "Why is always the good, sweet ones who die young?" I think it's Because God trusts us to be strong, love whomever is having the difficulty, and not turn our backs on God and blame Him for picking on us. These special children do so much good in their short span on earth, be it months, a few years, or 35 years.. that the rest of us can't come close.. All the easier to Love, too.. they are always so accepting to what is taking place within them, or for them, and just radiate the love.. God Bless you all, and all my prayers for you/yours as well as all others, continue.. RitaR Link to comment Share on other sites More sharing options...
sewingjunky Posted October 7, 2008 Report Share Posted October 7, 2008 You are on our list too. God is great, and his power mighty, as shown in Case. Brendalee Link to comment Share on other sites More sharing options...
Quilting Heidi Posted October 7, 2008 Report Share Posted October 7, 2008 Marie, I still pray for Case and will continue to keep him in my prayers. It is amazing how much little ones can go through! Hang in there. Link to comment Share on other sites More sharing options...
meg_marsh Posted October 7, 2008 Report Share Posted October 7, 2008 Marie, All my good thoughts and prayers. The joy of children - when they are sick that can be so sick, but the moment they feel better - they light up our lives - no complaints - just bubbly joy and happiness. That joy is what sustains us. Hang in there! Link to comment Share on other sites More sharing options...
Mary Beth Posted October 7, 2008 Report Share Posted October 7, 2008 Marie, You have been blessed with a beautiful baby with the sweetest personalty. I'm so sorry he is going through such a terrible time. He is touching so many lives, probably more than you know. I will be praying for Case and family. Link to comment Share on other sites More sharing options...
lizziesgirl Posted October 7, 2008 Report Share Posted October 7, 2008 Many thoughts and prayer for Case and all around him. God Bless Link to comment Share on other sites More sharing options...
JudyLynn Posted October 7, 2008 Report Share Posted October 7, 2008 Marie, I am so sorry to hear this news, you are all in my prayers and thoughts. Judy Link to comment Share on other sites More sharing options...
Boni Posted October 7, 2008 Report Share Posted October 7, 2008 Praying for what it takes--it's tough sometimes, but we are looking up, enjoying every minute we have together, and trusting God to take care and lead the way. May you find peace in His and Case's strength. Link to comment Share on other sites More sharing options...
quiltmonkey Posted October 8, 2008 Report Share Posted October 8, 2008 Thanks for sharing an update on Case. I am sending you many thoughts and prayers. Please give that gorgeous baby boy of yours a lovey hug and smooch from me. Link to comment Share on other sites More sharing options...
Gator Posted October 8, 2008 Report Share Posted October 8, 2008 Thanks for the update, I was just thinking about him when I logged on this morning. My prayers and thoughts are with you. I would love to see his precious picture when you get a chance to post it. Link to comment Share on other sites More sharing options...
lindasewsit Posted October 8, 2008 Report Share Posted October 8, 2008 Marie, I am praying for you and Case and the rest of your family! God has given you a very special gift! linda Link to comment Share on other sites More sharing options...
Sheri Butler Posted October 8, 2008 Report Share Posted October 8, 2008 Marie, Case and your family are all in my prayers. May God shine down upon you all, and Case...keep up that strength within you my child! Children are such a blessing in themselves. Link to comment Share on other sites More sharing options...
Jhend Posted October 8, 2008 Report Share Posted October 8, 2008 I so hate to hear about things like this when it happens to children. My heart and prayers goes out to all of you. Link to comment Share on other sites More sharing options...
IBQLTN2 Posted October 8, 2008 Report Share Posted October 8, 2008 praying hard. what an awful disease. He is in his Lords hands and that is what matters. He will be taken care in all aspects. Love and Prayers to Case and family. Jeanne Link to comment Share on other sites More sharing options...
Sandra Darlington Posted October 9, 2008 Report Share Posted October 9, 2008 Marie, You and your family are in my thoughts and prayers. (((HUGS))) to you all. Sandy Link to comment Share on other sites More sharing options...
kimmiequilts Posted October 9, 2008 Report Share Posted October 9, 2008 Marie sending prayers for little Case and all of your family. Link to comment Share on other sites More sharing options...
appr216 Posted October 9, 2008 Report Share Posted October 9, 2008 My thoughts and prayers are with you and your family. God bless, Judi Link to comment Share on other sites More sharing options...
junebug_one Posted October 9, 2008 Report Share Posted October 9, 2008 Marie, I am so sorry for your precious little Case's problems. I will keep you all in my prayers and in my heart. Please keep us posted. Many, Many Huzz going your way. Carolj. Link to comment Share on other sites More sharing options...
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